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Saturday, June 7th, 2008
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11:37 am - Sybil remake airs tonight
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| Saturday, May 17th, 2008
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10:28 pm - Observations - Herschel Walker
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| Thursday, May 1st, 2008
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1:07 pm - Sanjay Gupta Contact Information
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ksol1460
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From an email correspondent:
"Look here for a direct addrees with phone number and email address:
http://www.neurosurgery.emory.edu/FacultyGupta.htm
"Or go to Emory University of Medicine in Atlanta and put his name in search:
http://www.emory.edu/search.cfm
"if the other one does not work .
"His office hours are there as well as phone number, address, and email (he is on staff there 2 days a week).
"Someone should do a documentary [getting the truth out there] if Dr Gupta is going to show violent high-profile people like this. I respect his interest... but yes, I knew about this NFL dude. I had seen him on an inteview he gave a while back and hated it. I remember well hearing of his wife being terrified -- waking up with a knife to her throat.
"He also gave an interview on a Trinity Broadcasting Network religious show which made it appear as though he was "delivered" (!!) and she prayed so much but eventually divorced him. His interviews have been some of the most harmful -- even more harmful then the Sybil portrayal, because of his constant talk of violent 'personalities' like THE GENERAL.
"This is not the model we want out there. In fact, this is why whenever I am in a medical hospital I get treated like I might be a pathological, violent person [because the staff knows of my MPD/DID diagnosis].
"I saw the comment page and was perplexed that so many SO's of multiples responded saying 'how difficult it has been for family'."
current mood: gloomy current music: Cubs 1, Brewers 1 bottom of 6th
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(2 comments | comment on this)
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| Wednesday, April 23rd, 2008
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12:52 pm - "Herschel Walker's Alter Personalities"
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vinik
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My grandmother brought this to my attention.
It appears I'm not the only one who thinks this is messed up either. There have already been people commenting on this article who are saying this doctor is spreading misinformation, fearmongering, etc. The comment I submitted is below, but you won't be able to see it on the webpage until it's approved by the site's moderators:
"Jenny -
I was told by a family member to look at this article, and I’m just shaking my head. I’m really relieved to see other people voicing concerns over the bad impression this article gives of those who have been diagnosed with MPD/DID. Also, it’s refreshing to see that I’m not the first person to comment on this that was diagnosed as being DID, did not integrate, and has a productive life now.
I share my headspace with 15 other people. Even though I developed PTSD symptoms in my teenage years, signs of me not being “alone in here” have been evident to family members since the age of 5. I requested a full psychiatric assessment at the age of 19, as I already knew what was going on, but felt I needed validation. After diagnosis, I continued treatment with a psychiatrist, which didn’t help. I became more dissociative and depressed when taking anti depressants and anti anxiety medication. I decided to go another route: acceptance. Help my people learn how to communicate with one another and get along. Deal with the PTSD as is with psychiatric social workers and peer counselors. I ate well and exercised, meditated, did CBT, and group therapy. If later on down the line it wasn’t working and my people still wanted to integrate, “we” would go that route.
It’s been 9 years. I don’t have blackouts. My people get along as well as any family would. I’m in a successful long-term relationship, I’m able to work, and I’m a parent as well. Most who I tell are surprised, saying that I “seem so normal”. I have to be careful with who I tell though, because sensationalized media articles like this one make the average person think that multiples are dangerous and crazy."
-Kennedy & co.
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(2 comments | comment on this)
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| Thursday, February 21st, 2008
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10:59 pm - Seen this?
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| Monday, December 17th, 2007
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10:03 pm - The Manifold
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zyfron
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Hi again all! Anyone here still remember "The Manifold?" That zine we were going to do? Well, I'm re-starting the project.
Sorry for dropping off the radar so suddenly and for so long. I'd rather not go into detail, suffice to say that internal emotional distress with regards to our own plurality and our corresponding relationship to our family and friends led to a mental/emotional breakdown which sucked away all our energy and kept us away from online communities (which tend to increase rather than alleviate stress in these areas).
In any case, I've started a message board specifically devoted to the creation of "The Manifold," as well as created a few administrative tools which may help us along. Anyone still interested in participating in this project should visit the board at:
http://themanifold.proboards105.com/index.cgi
If Pavilion would still like to endorse this project, we'd be more than happy to include a Pavilion logo on the cover of the zine, as well as include information and links pertaining to pavilion in each issue. If Pavilion as a whole is not interested in endorsing this project, *shrug* then it's an independent project, and it's no big deal to us.
In any case, anyone who's interested should go sign up for an account. If you sign up under a name other that your livejournal name, please identify yourself in some way so that we'll know who you are. Thanks for your support, and we apologize for the six-month delay.
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(2 comments | comment on this)
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| Tuesday, October 2nd, 2007
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4:05 pm
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cold_ataraxy
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We are in the middle of drafting a letter to Wolf Films Inc., regarding their portrayal of DID/MPD in their recent pilot for Law and Order SVU. It will be sent out within a week, and we will make a copy available.
-Featherdance
Edit: The letter will be sent out as soon as there is postage in the house.
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(2 comments | comment on this)
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| Saturday, July 7th, 2007
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1:52 pm - Published, but they edited it
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vinik
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Remember this?
They published the letter in August 2007's Chatelaine, but they took out a whole bunch. The letter now looks like this:
"HOW IT REALLY FEELS Re: How it feels...[June]: While many people with Multiple Personality Disorder (MPD) or Dissociative Identity Disorder (DID) have difficulties functioning in everyday life, this isn't always the case, as your article suggests. I currently share my headspace with 17 people of all kinds. Over the years my people and I have learned to work together, and today we are highly functional and happy just the way we are. NAME AND LOCATION WITHHELD"
Edit: I think they got the point across, it just sucks that they took some stuff out. And I really did think I asked for them to put my initials in, so that's kind of annoying.
-Jen
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(3 comments | comment on this)
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| Saturday, May 26th, 2007
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6:10 pm - More for the Zine
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zyfron
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Just a small issue I came across while writing the introduction and setting up the website for the zine:
Does anyone have a good idea for a title?
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(6 comments | comment on this)
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| Tuesday, May 22nd, 2007
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12:30 am
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zyfron
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Would have posted this earlier, but our computer fried itself on Friday!
OK, fine then. Nobody wants to brainstorm, it seems. According to our calculations, this is cheap enough to be practical out-of-pocket style, so let's just make one!
crystalseraph, shared_space, and hms_beagle have agreed to write articles, so please state what you're going to write about for the first zine so that we don't get overlap. Anyone else who wants to write, please post as well.
Anyone who wants to do cover art, please volunteer or submit a proposal for a cover. I'll do this if nobody else wants to. Submissions of cartoons, jokes, or anything else you think might be interestng and worthwhile are also great. We'll be going through everything that goes in, though, so please only submit quality work (i.e. not full of typos etc.)
Unless somebody objects, let's have the zine be a full 8x11.5 page. A larger, thinner zine will stand out more than a smaller, thicker one. Besides which, it's easiest to put together that way.
We should have an introduction for our first issue (possibly in every issue?), which should state the purpose of the zine and have some sort of welcoming message both to singlets and to other multiples. Acctually, I'd like to be the one to do this, but if someone else feels strongly about it or has a good idea or essay and wants to do it instead, speak up.
Also, if anyone wants to be the one who puts all the submissions together into a final product, please speak up now. If nobody volunteers, we'll do this.
In the next few days (computer problems allowing) we're going to make a site with a forum for posting and submitting to the zine. If someone has some webspace or a domain name they'd like to volunteer, great. Otherwise, it will just be a free site, possibly bravenet since I already have an account with them.
If you want to submit something before the website is up, email us at Swerelrekej@Myway.com, and we'll keep it and hand it off to whoever ends up putting it all together. Or, if that happens to be us, then we'll have it ready.
Let's do this!
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(22 comments | comment on this)
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| Sunday, May 13th, 2007
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1:41 am
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zyfron
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Hi again all. OK, two things:
1) Finals are over, and I've finished moving back home/unpacking(mostly) so we're ready to focus on the zine, and would like to start brainstorming ideas for funding. So far I've found these links helpful:
https://www.google.com/adsense/login/en_US/?sourceid=aso&subid=ww-en-ha-adsense&medium=sem http://www.smashingmagazine.com/2007/03/22/google-adsense-facts-faqs-and-tools/
http://www.cafepress.com/cp/info/sell/
http://www.businessweek.com/magazine/content/05_50/b3963130.htm http://www.adjab.com/2005/11/09/google-publication-ads/
Most of this is about making money off a website, though. so if anyone has any useful links for advertising in a magazine (the google thing is still in beta and may never be anything but by-invitation anyway) please let me know. Also, if you have any other ideas for funding, that would be great, too. We were thinking of starting the zine out as a web-based publication if we can't find sufficient funding, but if that's not the direction the group wants to go.....(opinions?)
(note: we're an engineer, so I hope our desire/need to brainstorm in a group doesn't come off as trying to get someone else to do our work. It's just the way we think. It's how we're trained.)
2) As some of you may know from posts elsewhere, we're currently writing/drawing a webcomic based on our life (will be put online when I have ten strips done, currently working on #5 but now have a lot more time available). In any case, we were planning on including several scenes which make reference to Pavilion (not to anyone here specifically, but to our own participation here, and how it's affected our view on things etc.) I just wanted to make sure nobody took issue with that. If I ever want to quote or mention anyone specifically, I'll ask you specifically when it comes up, right now I'm just asking permission to reference Pavilion.
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(3 comments | comment on this)
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| Monday, April 23rd, 2007
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12:15 am - Zines
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zyfron
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Hello again! We have, yet again, another idea for activism. This was not actually our idea, it was crystalseraph, in response to my last post about writing letters to local newspapers, and we think it's a great idea.
In any case, the idea is to publish a"'zine," sort of a miniature magazine which we would publish on a small scale and distribute to universities or libraries or wherever, just leave them around for free in public places. It's a little more practical than writing to papers, since they would almost definitely not publish (though I'm still not convinced it's not worth trying...I might do it on my own just to see...) . Also, it could be a lot of fun to make!
crystalseraph, shared_space, and I have already agreed to pitch in for articles, management, etc, and we're pretty certain we know a few other people to contact who would be willing to help, so this is almost definitely going to happen, or at least get started.
So does anyone else want to help out? I presume we would take article submissions even if the author wasn't regular staff, but it's good reference for us to know if you want to help out or be on the regular staff.
Also, whether you want to write or not, does anyone have any ideas for sections to include consistently or have any good ideas for where to put them or anything else that might help?
And specifically, I was thinking that there should be a website to go along with the zine, at least as a point of contact for readers and possibly as an online publication. So if you want to be on the staff, what do you think of that Idea?
Should it be done as specifically pro-Pavilion, or just multiplicity in general? Personally I was thinking a little bit of both.
Input of any kind would be appreciated. Ideas for a title would also be great!
current mood: excited
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(8 comments | comment on this)
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| Thursday, April 19th, 2007
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2:13 am - Something Practical
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zyfron
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Most of what I've posted here and on "multiplicity" calls for somewhat drastic action to be taken, i.e. to have meetings in person etc. It is clear that the multiple community is not yet ready for this kind of step, but it would still be nice just to be doing a little something more. Usually, people are all for this idea, but can't think of anything to do, or, if they can, it's something over the top or impractical.
Now, I'm not in any way trying to put down or criticize what work has already been done and continues to be done, but the last updates on Pavilion Activities, according to the website, are from 2002....five years ago...there seems to be a bit of a lull....
It is certainly possible for us all to act independently, but we are stronger if we act together. Even a small thing, if done by many people at once, can make a difference. In any case, going with small, practical steps, this is what I propose:
What if everyone here at Pavilion (per body, of course, no need to place undue time constraints etc.) wrote an article to submit to their local newspaper every monday? Just something small, maybe 2-3 paragraphs about some topic or other. We could all write on the same topic, and maybe we could all forward our articles to the New York Times and maybe a few other major papers. We could include an email or our LiveJournal accounts so that people could write us with questions. Of course, there's no guarantee that any of these would be published, but some of them might be, and if we all wrote on the same topic and maybe got into some of the larger papers once or twice, and if we clearly state that we are doing this in scattered places around the country, then maybe, just maybe, people, at least a few, will start to notice us.
I know being noticed is in some ways a frightening thing, but isn't our goal to educate the public? And how can we do that, if nobody knows we exist? I know that the Paperchase project was a big thing that didn't really work, but I also think it may be easier to at least get our foot in the door with the media than with academia, at least until we get a few PhD's on the team.
I propose that we could write on simple things, the sort of things you see in "The Layman's Guide," discussing what it is to be plural and healthy in terms singlets can relate to, not attacking or accusing but simply explaining. I think that the first one should just be to say that we are doing this, and why, so that it will make sense to people where these new articles are coming from each week. We could report back on whether or not our article was published, and use those victories as leverage to get more papers to publish as well, or to find out who writes the most compelling articles for times when we need something specific.
So, what do you think? Any takers? I know that I could just do this alone, but as a movement, it seems much more compelling, and much more far-reaching, to the point of possibly being effective...eventually.
Please help me on this, If we (by we I just mean I&, but that seems so impersonal...) can get enough people to agree, we'll definitely start writing each monday! but for this to work it needs to be coordinated (decide on topics, etc) so please tell me if you're interested!
current mood: hopeful
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(12 comments | comment on this)
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| Friday, February 9th, 2007
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12:43 pm - *dies*
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| Tuesday, January 30th, 2007
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10:22 am - Web Map
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zyfron
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Ok, I've registered a map with bravenet (go see it at http://pub41.bravenet.com/guestmap/view.php?usernum=3491038443), and it looks like it should work pretty well. Anyone who wants to link to it, just copy and paste the code below into your website. If anyone has nay suggestions for things I should change, don't hesitate to let me know.
Get a Free Guestmap<div style="text-align: center; width: 140px"><a href="http://pub41.bravenet.com/guestmap/v iew.php?usernum=3491038443"> <img src="http://assets.bravenet.com/bravenet/i mages/guestmap/copypaste/1_1.gif" border="0" title="Free Guestmap from Bravenet" alt="Free Guestmap from Bravenet"></a> <br /><a href="http://www.bravenet.com/webtools/g uestmap/" style="font: 11px tahoma,sans-serif; color: #004891;" TITLE="Free Guestmaps by Bravenet.com">Get a Free Guestmap</a></div>
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(3 comments | comment on this)
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| Friday, January 5th, 2007
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12:45 am - Pavilion Map
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zyfron
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A while back, ksol1460 posted an interesting comment on one of my posts, suggesting that, to ease the process of initiating a floating teaparty, Pavilion could have an official web map for members to locate eachother with. Well, I didn't see that post until just now (I had assumed that nobody was commenting on that post anymore by the time it was written), but as soon as I did I rushed off to Bravenet.com, and, sure enough, they offer a free one
http://www.bravenet.com/webtools/guestmap/
If nobody else wants to take on the responsibility, I can build and maintain a site for this map, if we actually decide to have one, but of course if someone else would rather do it that's great also. If nobody specifically says they want to be the one doing it, I'll just make a site and post the map, and hopefully we can link to it on the Pavilion website.
Of course, if for some reason anyone thinks we shouldn't do this, speak up! I'm really excited to actually be doing something....even if it is just a webmap.
i think I'm probably going to suggest this sort of thing over at 'multiplicity' also, in case someone ever wants to hold some sort of larger meeting not just for Pavilion members.
(BTW, this may be a stupid question, but do I actually count as a pavilion member? I filled out the form and I've been posting here, but I'm not on the website or anything so I didn't know if it was official. No hard feelings either way...I'm just a little unclear on whether or not I'm actually allowed to tell people that i represent Pavilion)
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(2 comments | comment on this)
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| Sunday, December 17th, 2006
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4:11 pm - Il Gatto Sul G
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ksol1460
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Got this letter in this afternoon's email. Does anyone know what she's referring to?
Pavilion Staff -
Firstly, I'd like to congratulate you on your web site. I found the articles I read to be interesting and informative. Thank you. I noticed that you had a section for manga. My friend, who was diagnosed with DID two years ago, introduced me to Il Gatto Sul G by Tooko Miyagi. My friend has brought up some interesting views on the portrayal of the main character who seems to have some form of DID (at least the author seems to be making a claim, it hasn't fully been revealed). I was wondering if anyone on the staff had read this and what their opinions were. I'd love to see an article if you ever get around to it. Keep up the great work : ) -Amanda
current mood: lazy current music: Neil Young - Interstate
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(3 comments | comment on this)
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| Tuesday, November 28th, 2006
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1:19 am - Meetings
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zyfron
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Firstly let me say that I love Pavilion and its message, and I think the whole idea of an online community is a wonderful thing. Just knowing that you all are out there has helped us through some pretty dark times. But ultimately, I think we need to do more.
If there are already advocacy groups for healthy multiplicity that meet in person and I am simply not aware of them (which is very possible) will somebody please correct my error and tell me where I can find them?
If there aren't, I'd like to start. Most of us are to afraid to come out and live as openly multiple in today's world, and with good reason, but if we don't start at least meeting and coming out to each other, I don't see how we can take the next step and live openly to the world.
Writing letters and sending pamphlets is great, but ultimately letters from individuals (head count) and internet forums aren't going to hold much weight. We are all so well hidden nobody has any idea how many healthy multiples there are out there. Imagine if instead of writing letters as concerned individuals, we could back it up with numbers..."so and so many thousands (head count) of people support this view as members of Pavilion". At the moment, as far as I know, at least, we simply have no idea.
I am currently at Northern Arizona University, and we are going on winter break in a few weeks. When we come back for the spring semester, I'm going to start organizing meetings in my area, if I can. I'm thinking that the meetings would have to be fairly secretive, since the school administration and likely any other authorities would almost certainly never agree to host such a meeting, and we don't want to put up signs saying, from the general public's point of view, "Hey everyone! there's going to be a bunch of dangerous psychopaths in room 106 at 7:30!"
I'm posting this way in advance of doing anything because I would greatly appreciate any feedback or advice, either on whether or not to have meetings at all, how to find people and get them to come if we do start having meetings, or what to do once we're all together.
Is this a stupid idea? Sometimes I just feel the need to DO something to avoid going crazy from isolation. I could be overreacting, so if this seems to drastic, please tell me.
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(4 comments | comment on this)
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| Saturday, November 25th, 2006
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1:57 am - Gentle activism?
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shared_space
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When it comes to activism we are fine when talking to sceptics and naysayers and those who think we are insane, or alternately singlets who are just interested, we give them info, we give them links we talk about the history of psychiatry ect, but we think that w don’t really have a handle on how to talk to those who are multiple and totally buy into the medical model of it. We think that a completely different softer approach is probably needed because realizing or being told that you are different from almost everyone you know is an extremely stressful experience especially as more often than not these people are then told that it is wrong to be the way they are.
Basically what we are asking is how do you show people that healthy multiplicity exists and is an option for them without having them feel threatened at a point in their life when they may already be feeling very fragile?
Also do you think it is inappropriate to go to forums that are set up as "DID/MPD" "Support" places and have these conversations with people?
Thanks
The Pod Collective
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(2 comments | comment on this)
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| Thursday, November 16th, 2006
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10:28 am - DSM-IV/DID
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zyfron
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I just had an interesting thought today, one which may not be particularly meaningful to a lot of people here, but which is worth considering nevertheless. As most everyone here already knows, the DSM-IV removed "Multiple Personality Disorder" (listed in the DSM-III) and replaced it with "Dissociative identity Disorder," which is defined as the "delusion" of having multiple personalities. The intent of the message is quite clear, as many others before me have pointed out, that there really are no such thing as multiple personalities in one body, which is of course total bullshit and not at all good for us as a community.
I was thinking though, that this may actually be to our advantage in a legal sense, i.e. at a hearing to determine whether or not a person can be involuntarily committed, which is something a lot of us worry about. Among the things NOT listed in the DSM-IV are sanity, intelligence, and other "non-disordered" states of being. The fact that multiplicity, especially healthy multiplicity, is not listed in the DSM-IV (only the "delusion" of multiplicity is) could be construed to mean that multiplicity is not in fact a disorder unless you are delusional about it. In other words, multiplicity is not officially a disorder. Now, it's a long shot that something like this would ever stand up in court, and it certainly wouldn't work on anyone involved with psychology since they would know the true meaning and intent behind the change, but it still makes us feel better to know these little legal loopholes.
We are not delusional, therefore we are not disordered according to the DSM-IV since DID involves delusion. Of course we wouldn't be disordered anyway, but its nice to have a legal out. Not that you could ever prove you weren't delusional, but still.
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(4 comments | comment on this)
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