Alejandra (Lady Baroness of Xternetsa) ([info]aleja) wrote in [info]no_pity,
@ 2005-11-18 13:06:00
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[cross-posted] Disabled woman sues doctor for letting her be born (Australia)
In 'wrongful life' suit, disabled woman blames doctor for letting her be born
By Emanuella Grinberg
Court TV
Updated Nov. 11, 2005, 7:08 p.m. ET

A blind and deaf Australian woman who claims she never should have been born is suing a doctor for a lifetime of suffering in the country's first "wrongful life" suit.


Alexia Harriton, 24, is seeking compensation from the doctor who misdiagnosed rubella in the first trimester of her mother's pregnancy, claiming Olga Harriton would have aborted her had she been aware of the potential birth defects arising from the illness.

Lawyers for the Sydney woman argued in Australia's highest court Thursday that Dr. Paul Stephens is liable for the costs arising from a lifetime of medical treatment that Harriton needs to survive.

His negligence resulted in the birth of a child who is "profoundly disabled," a media spokesperson for the law firm representing Harriton told Courttv.com.

Harriton's lawyers claim that Stephens had a duty to Olga Harriton and to her unborn daughter to inform her of the risk of the infection passing to her child.

"Had the rubella been diagnosed, Olga [Harriton] would have exercised her lawful right to terminate the pregnancy," court documents state.

The suit says Harriton, 24, who was born mentally retarded, spastic, deaf and blind, is in need of constant round-the-clock care from which she "can look forward to no improvement" in the future.

Harriton's attorneys asked Australia's Court of Appeals Thursday for unspecified damages associated with Alexia's "rubella affected life," including the costs of special care, medical expenses, housing and other expenses, according to a press statement. The lawyers would only speak to Courttv.com through their spokesperson, Kerry O'Shea.

A statute of limitations prevents Harriton's parents from filing the claim, making the case the first in Australia to be filed against a health-care specialist by a child born with congenital defects.

Harriton's suit, which was initially filed in 2002, was denied by lower courts on the grounds that the doctor did not breach his duty to the mother or the child.

"The defendant has not caused the infant's injury but merely failed to prevent its birth," Justice Timothy Studdert wrote in a June 2002 judgment.

Studdert also cited rulings from foreign courts, including the United States, which addressed the esoteric difficulties of putting a dollar tag on "the value of non existence" as compared to the costs of living with a disability.

"Whether it is better never to have been born at all than to have been born with even gross deficiencies is a mystery more properly to be left to the philosophers and the theologians," the New York Court of Appeals wrote in a 1986 decision rejecting a similar "wrongful life" claim. "The implications of any such proposition are staggering."

A similar claim had greater success in California, where the state appeals court found that a testing laboratory was responsible for the medical costs associated with the care of a child whose parents were not informed of the potential for a certain genetic disease being passed onto the fetus.

Alongside Harriton's suit is a similar claim from a 5-year-old Australian boy who was born with permanent brain damage and cerebral palsy after doctors failed to detect a blood disorder present in his father's system.

Keeden Waller's parents have filed suit on his behalf, claiming they would have sought out other methods of conception had they been aware of the potential for birth defects.

Waller's claims were also heard Thursday in conjunction with Harriton's, after a New South Wales appeals court rejected both their claims in 2004 in a 2-to-1 decision.

Those justices also said it was impossible to determine whether no life was better than a life of suffering, or to assess liability for that suffering.

Appeals Court Chief Justice James Spiegelman also found that the doctors did not breach any duty to the children.

The dissenting justice, however, found the doctors' negligence especially grave in light of the fact that the disabilities were easily detectable and preventable.

The High Court is expected to render its decision in the next few months.

Article URL:
http://www.courttv.com/news/2005/1110/harriton_ctv.html



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[info]nts_are_weird
2005-11-18 06:27 pm UTC (link)
Ugh. One of my closest friends is disabled (autistic) as a result of her mother having rubella while pregnant. She is easily the most joyful and happy person I know. I find it next to impossible to be miserable while in the room with her (and it's not a happy-shiny kind of thing either - she's also one of the first people I call when I'm really depressed).

How would the doctor have known which outcome would occur? He wouldn't have. I'd hate to have seen my friend, with her joy for life, aborted simply because she could just have easily been miserable in life. (and I know plenty of people with similar disabilities to her who are unhappy)

Severe disability does not imply unhappiness in life. Disabled people certainly can be unhappy, but there is no direct link.

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[info]nts_are_weird
2005-11-18 07:32 pm UTC (link)
Of course depression is "in your head" so it isn't as *severe* as a "real" disability like being paralyzed. But it's got a much worse stigma, because someone with depression can't just "pull themselves together" or whatever. It's a character flaw in today's society to have anything "wrong" with your head. And ask most neurotypicals - they'll tell you that they might be okay with a physical disability, but if they had a severe mental or neurological disability, they'd want to be dead instead.

But, yes, I hope that the happy disabled people do get their voice heard.

We see the same thing all the time in the autism community. "See how awful autism is, see how awful autistic lives are?" Then an autistic comes out and says, "Hey, I like living" and the response is typically, "Well, YOU may, but you aren't REALLY disabled like my son is..."

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[info]crypticgirl
2005-11-19 05:39 am UTC (link)
Oh, I agree totally, and I'm much more closely linked to the plaintiff's situation here. My mother had rubella while she was carrying me and I was born totally blind, partially deaf and with a heart condition. These days I'm profoundly deaf (but I hear with a cochlear implant), partially blind (operations to fix my sight a little) and the heart condition was fixed when I was four.

I'm the same age as this woman and living in the same country, and yet we had such different outcomes from the same disease. I can quite confidently say I'd much rather be alive than dead. I have a degree, I'm employed in a skilled job and I live with my boyfriend. My life might suck in different ways to other people's, but it doesn't suck for the majority of the time - not anything near it.

And yet... I think that if my mother had known she had rubella and the ways in which it could potentially affect me, I suspect she would've seriously considered an abortion. Of course, now that I've been around for some time it's a very different story.

I can't see how these people can be so certain they'd have aborted their daughter if they'd known. I don't understand how they can be so sure that their daughter's physical and intellectual conditions are solely responsible for her life being miserable to whatever extent it is, rather than placing some of the blame at the feet of a society that doesn't begin to adequately provide the enormous range of services and the moral support needed to improve the life of someone in this woman's situation.

Most of all, I'm flabbergasted that her parents could publicly, consistently claim that her life has never been worth living in order to get her the services she needs. I can understand wondering about her quality of life, and I can understand pushing the point that she doesn't have a very happy existence to improve the situation. I can even understand how on a bad day taking the full load of care for someone with such severe disabilities might make you wish they'd never been born. But to take it to this level just icks me beyond belief.

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my view .......
[info]call_me_lovey
2005-12-28 01:52 pm UTC (link)
I can understand that too. I have cp too, so I suppose that I'm a "spastic" as well. I can understand how doing full care for someone, 24hrs a day, 7 days a week, could make the person's carer / parents wish they'd never been born, (whether they say it notwithstanding) I suppose when the person's got mental problems it's even harder because they can't understand what is wrong / what's going on, but that doesn't excuse that.

If Alexia is as "mentally retarded" as the article says there is no way she'd ever be able to make a desicion like that

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[info]sweet_byrd
2005-11-18 06:35 pm UTC (link)
I have to wonder if this is really the daughter bringing suit, or if it is a procedural conceit for the parents complaint.

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[info]aleja
2005-11-18 06:51 pm UTC (link)
I'm wondering that, too.

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[info]ironjawedangel8
2005-11-18 07:45 pm UTC (link)
I would imagine that it's probably the parents bringing suit through the daughter because of procedural issues. The article said that the statute of limitations prevented her parents from filing suit, so I'm guessing this was the only way the parents could get the case past the pre-answer motion phase of the proceedings.

It really pisses me off, though.

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[info]nts_are_weird
2005-11-18 08:20 pm UTC (link)
My parents have plenty of problems, but they've never indicated that they would have preferred that I didn't exist.

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[info]rainbow_goddess
2005-11-18 09:27 pm UTC (link)
Mine have.

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[info]tokidokidee
2005-11-19 02:13 am UTC (link)
Here too.

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[info]bookgirlwa
2005-11-22 01:45 pm UTC (link)
So have mine - they left the country to get away from me - although, emotionally, they left when I was diagnosed with CP at age two. :-( That's what make a life with (or without) a disability hard to bear - lack of love, care, and support from your `nearest and dearest' - *not* the disability.

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[info]call_me_lovey
2005-12-28 01:53 pm UTC (link)
I hope your parents think about their actions.

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[info]harriettheelf
2005-11-18 08:18 pm UTC (link)
It's the parents suing on behalf of the child, but since they wouldn't have standing to bring suit in their own names, they're bringing it in her name.

Disgusting, gross, horrid, etc ... all the same.

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[info]nts_are_weird
2005-11-18 08:19 pm UTC (link)
Ick.

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[info]sweet_byrd
2005-11-18 08:22 pm UTC (link)
I was more wondering whose idea it was to sue -- the person behind the idea of 'wrongful life'. Given that the daughter has a guardianship, she just wouldn't have the standing to sue herself.

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[info]harriettheelf
2005-11-18 08:24 pm UTC (link)
I would be willing to bet you cash money that it was the parents' idea. Seriously.

If it was the daughter's idea, I would also bet you cash money that the parents gave her the idea and nudged her along in that direction.

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[info]sweet_byrd
2005-11-18 08:34 pm UTC (link)
That's pretty much what I figured, too. It seemed not impossible (though extraordinarily unlikely) that this might be a situation similar to that of Larry McAfee, though.

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[info]redrainstorm
2005-11-18 09:41 pm UTC (link)
It's not the doctor's fault.

Some people will do anything for money.

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[info]dianadragonfly
2005-11-19 06:31 am UTC (link)
Oh Jesus Christ.

Someone should sue to abort the lawyer!

gross deficiencies
Yup...these people have them.

If this girl is mentally retarded according to this article and needs constant care, is she even ABLE to bring suit at all, or is someone bringing suit in her name? It's different than the parents coaching her to sue if she isn't even in a position to be coached.

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strange stuff
[info]3kitties
2005-11-19 12:27 pm UTC (link)
Ok, so let me get this straight... You've got a mentally retarded person filing a law suit and a five-year-old filing a law suit, and it's established that the parents can't do it. It seems to me these people are being exploited by the parents. Do they understand what their filing???

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(Anonymous)
2005-11-29 01:32 am UTC (link)
> "Whether it is better never to have been born at all than to have
> been born with even gross deficiencies is a mystery more properly
> to be left to the philosophers and the theologians," the New York
> Court of Appeals wrote in a 1986 decision rejecting a
> similar "wrongful life" claim. "The implications of any such
> proposition are staggering."

Why are "gross deficiencies" (hate that term) viewed as so awful that it's even thought of as a possibility? If a normal, black person in a very racist communicity sued for "wrongful life" because they were suicidally depressed as a reaction to the racism, claiming the doctors and their parents "should have known they'd be black", most people would correctly identify the racism as the issue involved.
And people have a right to life. The idea of a right not to be alive is in direct opposition to this.
Ettina

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FOLLOW-UP
(Anonymous)
2006-05-11 09:20 pm UTC (link)
http://www.courttv.com/news/2006/0511/wrongful_life_ctv.html

Australia's Supreme Court tosses suit

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