intensity junkie ([info]tikva) wrote in [info]no_pity,
@ 2005-07-26 12:27:00
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Current mood: determined
Current music:Cry Cry Cry - Speaking With the Angel
Entry tags:ada, anniversary, disability, soapbox

"I am with you. I love you. Lead on."
[Cross-posted from my journal. It's a bit U.S.-centric, and I apologize. I'd love to hear about other countries' laws as well].

The above are the last words of one Justin Dart, Jr., hailed within the disability community as the "father of the ADA" and the "godfather of the disability rights movement", as one obituary put it. I won't presume to speak for my fellow gimpyfolk, but in this movement, saying, "Justin Dart said..." is sort of like saying, "Jesus Christ said...". *heh*

Today is the 15th anniversary of the signing of the Americans with Disabilities Act. Now, some of you may know this story already, but in the summer of 1990, I was 16 years old and starting a new job. I almost didn't get that job. I applied for it two or three months before the law was signed; I was going to be a camp counselor at the same day camp I'd attended as a child. I was good with kids, had worked as a teacher's aide for years at my temple's Sunday school, was a Red Cross certified babysitter, had plenty of references, all that bullshit. I interviewed well, and the interviewer came right out and told me how impressed she was with me. I was completely honest about my visual impairment, but confident in my ability to do the job, and very clear about what kinds of accommodations I might need. The interviewer told me at the end of the interview that she would otherwise have offered me a job right away, but that she found my visual impairment "disconcerting". (I ran right home and looked that one up). When I finally got a call offering me that job, it was after - and possibly because - she had quit. I got perfect evaluations three years in a row. But I would have had no rights in that situation, not at that time. And believe me, plenty of people out there think blinks can't take care of kids, or shouldn't have them. Witness the problems that a blind couple is currently having trying to open up a day care center.

The first law giving me the right to an equal education was passed the year I was born. I never went to school without that protection, and I am grateful to those who came before me who made that possible.

Let me tell you a little bit about what my life would be like without the ADA. Bear in mind that I am white, upper-middle class, and was raised to self-advocate, and so my chances of experiencing discrimination are far lower than those of most people with disabilities. I was educated in one of the best school systems in the country for blind children. I went to college out of state. Hell, I didn't even realize how different my experience was until I went to college. In fact, I didn't identify as a person with a disability until then.

Restaurants, doctor's offices, and stores would be off-limits to me if I wanted to travel with my guide dog. I might be in a heap of legal trouble, being unable to read most contracts and leases I'd signed, as no one would be under any obligation to read them to me or provide them in alternate formats. Had I not gone into the field of disability, I might find it impossible to get a job, although unlike many of my compatriots, I'd at least be able to get to one some of the time. Voting would be a public and dependent act. In fact, civic participation of any kind would be a real struggle. I would be unable to patronize a number of businesses because I would not be able to receive any assistance in figuring out what products or services they provided. Museums and the arts would be extremely incomplete experiences for me. Etc., etc. And I'm not even deaf or mobility impaired - there are many, many other effects that the ADA has had on those populations. Hell, I'm not even totally blind.

(I did not include anything involving education in the above examples, because most educational institutions receive federal funding, and the laws pertaining to recipients of such funding have been around since...well, since I have. Housing is also covered under a different law).

I am not going to try to tell you that the ADA is perfect, that it meets all of our needs, or that it is as strong now as it was 15 years ago. I believe earnestly that unless this country fights for this law, it will die. For those of you who do not have a disability, this is also your law. If you are ever perceived as having a disability, and treated badly as a result, this law covers you. If you intend to get old before you die, this law is your protection, because anyone who lives long enough WILL develop a disability. One in six people in this country has a disability, and that number is rising. This is a good thing; this means we're living and not dying. You may feel that I am being melodramatic, but without this law, people will die. This law provides for access to health care, groceries, and basic communication. This law means that a deaf person can reach 911. It means that a woman using a wheelchair has a hope in hell of having breast or cervical cancer diagnosed in time to save her life. (We're working on that, but we at least have the legal basis for it). It means that when you're 70, you won't be confined to your house. At least ideally, that's what it means. The movement is, as always, a work in progress.

Yesterday, my employer posted a number of agreements with various communities to make their programs and services more accessible to people with disabilities. Included among them were Tucson, AZ (remember Mystery City? It even includes entire attachments on buildings I surveyed!); Prince George's County, MD (hi, locals!); Providence, RI; and Miami, FL. We also put up a free online tutorial for businesses to teach them about their obligations under the ADA. If you're interested, it's all on our web site.

Lead on, the man said. In South Africa, they say, "Nothing about us without us." And here we are. We've done a lot of work, and we've got a lot of work to do.




(Post a new comment)


[info]trinityva
2005-07-26 04:31 pm UTC (link)
This is going straight into my memories. THank you.

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[info]beginning
2005-07-26 04:49 pm UTC (link)
I did the same with the entry posted to [info]equal_access. Throat lumpage going on.

(Reply to this) (Parent)


[info]blackperson
2005-07-26 04:37 pm UTC (link)
I'm not a person with a disablity. I'm a person who cares. This post was linked to me by a friend and I'm going to check out your website. Just wanted to thank you for sharing.

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[info]jenlight
2005-07-26 04:52 pm UTC (link)
Thank you for this.

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[info]francisb
2005-07-26 06:13 pm UTC (link)
I agree with you to some extent about the ADA, there are a few more teeth
in the law, in ways, things have improved. Yet when you look at over all socio-economic status and employment
nothing has changed. Money is power, let us never kid ourselves. So, makes me wonder
at times like today, what exactly have we really gained? 70% of us are still unemployed.
Often it seems to me that a lot of bandaids have been applied, some of the scars have been soothed,
but the disease still rages. And legislation will never cure it, the laws are necessary,
but never in the end solve the core issues. Spoken btw as a totally blind professional, currently again
in the job search scene.

(Reply to this) (Thread)

sadly agree
[info]3kitties
2005-07-26 11:02 pm UTC (link)
Unfortunately I agree with Francis. The ADA has had some positive impact--it's a good wake-up tool for people who are generally open-minded and just need a little nudge in the right direction. "Ooooh, I didn't realize! ..." And the light comes on and things get better. But in situations where discrimination is real and mean-spirited, the ADA is no good and not very enforceable. For those of us who apply for employment out of our home state, we can't use the EEOC to enforce it because the jurisdiction issues are hazy. Do we use my state's EEOC or the employer's state's EEOC? By the time we figure it out, time has run out and I get a right to sue letter. That's nice, but what person living on $579/month has money to sue? If any of you read my journal and can make any sense of my recent entry regarding my encounter with the company offering "jobs for people with disabilities," I was finally told that it would cost them $450,000 to make their software accessible! Whatever! I'm investigating my options for filing some kind of complaint, but I don't expect to achieve anything personally from it and am no longer even remotely interested in a job with the company anyway. I thought I had stumbled on something that would be suitable for me as a person with visual impairments and additional disabilities and enable me to juggle some of my medical appointments more easily, pay off a chunk of my student loans, and fund the graduate school that VR won't pay for so I can work the kind of job I really want. But at this kind of cost...?

(Reply to this) (Parent)(Thread)

Re: sadly agree
[info]hebe
2005-07-27 07:56 am UTC (link)
I'm a little lost, what do you mean by their software ?? that is a lot of money ...

(Reply to this) (Parent)


[info]etana
2005-07-26 11:22 pm UTC (link)
um..............would you like to print this in my zine? it's a better mark-up than i was going to do for the summer/fall edition and you're awesome.

(Reply to this)


[info]dianadragonfly
2005-07-27 04:52 am UTC (link)
Can I link to/distribute this?

(Reply to this)


[info]alcira
2005-07-30 08:52 pm UTC (link)
quick observation but when I'm on Fastweb looking for scholarships, all the ones I find for people with disabilities are about $500 to $1000. what's with that? its like, okay, less money for you hahahah, we want you on academic merit alone.

is there anything for people with chronic illness for example that's like 10,000 as much as another one I found is?

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