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| ( explanation behind cut )</div> ANy advice? Does anybody get these? Do they have seizures? Are you conscious throughout? How do you feel before and after? Thanks! Laura ~X~ | |
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| Hi everybody (it's been so long since I've written, tho I've popped my head up in comments occasionally)
This is not a direct CFS/M.E. question, but a side-affect sort of question.
For years, I've had red very very itchy bumps on my feet. Eventually they dry out (in a perfect circle). The pharmacist said it was because I'd taken so many antibiotics, my 'natural foot fungi balance' was out of kilter and hence picked up this condition.
I always had something better to treat, but in the last couple of days, it (they) have spread with a vengeance to my hands. The plump of my thumb, back of hands, middle of palm ....
The chemist has given me Paraderm Plus (antispeptic, anaesthetic, anti-inflammatory) which I think will only help with the symptoms (ie the itching).
I will ring the dr and ask (I can't go visit him for at least a week for financial reasons)
I wondered - has anyone else experienced this? If it comes about because of taking heaps of antibiotics, I thought it might be something someone has
be well as you can, | |
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| Forgive me if I've asked this before. I've a sneaking feeling that I have a few years ago. Anyway, the weather has just turned horribly humid, and from past experience Edinburgh can keep this up for at least a month at a time. It's been varying between 80% and 100% humidity over the last few days. Humidity always knocks me flat, and the most noticeable things are fatigue, breathing problems, and migraine.
1. Does anyone know what is going on in the body when we react badly to humidity? This might help me work out how to counter it, if possible.
2. Does anyone know any ways of dealing with it? | |
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| Most of you will know that I have been heavily involved in ME/CFS campaigning. Recently, our former leader decided to leave the team and took the original copyrighted name and website. Thus we have a new name (WAMCARE) and a new LJ community. Our mission remains the same: creating awareness for ME/CFS, supporting ME/CFS patients and their families, and raising funds for biomedical research. Come and join the WAMCARE board of directors and volunteers at wamcare If you want to know more about the changes you can read this in the community post here http://community.livejournal.com/wamcare/1224.html There are also several news updates there available to read. We will be posting the occasional important piece of news, petitions and campaigns or any calls for information in the livejouranal ME/CFS communities if this is ok with everyone, but the majority of updates will be available at wamcare Laura ~X~ | |
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| Bad title, yes , Anyways.. I have had tonsilitus (like really badly) for a while now and I am at the stage now where I am not sleeping it off but I am not well enough to go out . Whenever I get a bad cold my walking gets very weak and rubbish so I am also socially isolated and have been for a while ( I live in the middle of no where) I'm going a little bit mad and hyper and manic etc & I just wondered if anyone could point me in the direction of some activities I could do that will help me to have my mind focused but let my body rest a bit :) Any ideas would be wonderful, thankyou :) Esmae x
Update - I don't have tonsilitus I have glandular fever, blood tests came back today Thankyou for all of your suggestions, I am now volunteering as a card maker for Charity so I have lots of nice arty stuff to be getting on with :)
- Mood:cold

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| Inspired by __musicbox's last entry, I'm wondering if there's any other healthy snack or quick food options you guys rely on when in a time of need. I'm keen on expanding my "quick but good" food group. This includes food you prepare earlier for long-term snacking/quick food-ing. I have to do all my cooking, so if I can't cook, I can't eat. a couple of mine I keep a couple of packets of frozen veggies around. Since they're already prepared all I've got to do is heat them a couple of minutes and they're done. Actually, I like to keep frozen pretty much everything, since I've got no idea what my metabolism will be doing one week from the next. Frozen rice = AWESOME. Frozen rice + frozen veg + can of tuna/salmon + 3 minutes heating = MEAL grilled portobello mushrooms. Smothered in garlic. They take a comparable amount of time to a cheese toastie, but with heaps heaps more nutrition, and pretty much no fat. My life is incomplete because I don't have one right now. pre-packed salad leaves. cut up a tomato and some feta and drizzle it all in olive oil and balsamic vinegar (or other awesome things. I just can't get over balsamic vinegar, and see no reason why I should). Also super-awesome with added almonds. Takes about as long as it takes to get it all out of the fridge and cut up a tomato. 1-2 soft-boiled eggs. This was my staple when I was too sick to think. Good for when I needed something but had nothing. Probiotic yoghurt + cereal + canned fruit. Heaps of goodness, no preparation time. Almonds are my current favourite handful-snack. Yaaay almonds! What about yours? - Music:No No No - Yeah Yeah Yeahs
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| I'm currently investigating essential fatty acid (EFA) supplementation for ME. The problem is that while some research has been done, it's all a bit messy and there are umpteen different types of EFA supplement available. Some people are keen on VegEPA, which is marine fish oil and evening primrose oil with the DHA removed, at a dose of 8 capsules per day. I'm veggie so I'd prefer to take veggie supplements if possible, especially since we're talking about treatments which have yet to be thoroughly proven as effective for ME. The company who makes VegEPA now makes a vegetarian equivalent, although they say it's likely to be slower-acting. The idea of EFAs for ME mainly comes from a Professor Puri. However, when you look up his book on Amazon, the reviews make it clear that his research and methodology leave much to be desired, and that the trial showing that his beloved VegEPA supplement was beneficial also showed that sunflower oil had the same benefits. Hempseed oil is meant to be one of the best EFA sources, but you can't get it in veggie capsules and swigging the pure oil is revolting. I'm therefore tempted to go back to the EFA supplement I've used before, only try a higher dose this time. Does anyone know more about this? | |
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| Hey everyone :) Hope your AWAP!
I have been ill with colds (that have been wiping me out bad enough) for about 2 months now, its like, on my days at college I've been just scraping it,and then on my days off I've been bed ridden etc, I've been on a week of antibiotics but as soon as I was off them it came back but its finally come to a head now as I have ulcerated tonsils so hopefully the doctors will be sorting this out today.
I have about 20 days until college is over for summer,I have no 'exams' as I'm on a 100% coursework based course but at the end of each term we have to perform to a large audience and get marked etc and I also have a lot a lot of coursework to get done by then (but so do all the healthy people, I am pretty much one of the best students there despite the odd seizure/collapse at college)
I was wondering if any of you had any ideas of supplements or anything at all that can help me eat easier (I can't swallow atm due to this stupid thing without feeling like im swallowing glass) /recover quicker/stop me catching every bug that comes within a mile of me
I know I am very lucky to be able to do a full time college course (2 & a half days a week in college) because I have been under 5% on the scale before, but I just don't feel like I can cope atm, feel like I'm falling apart really.
Sorry for the essayyy, thanks for reading , Esmae x - Mood:exhausted

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| We are working on some projects for the Blue Ribbon Campaign for ME/CFS awareness at the moment. One of the projects I am working on is a biomedical research charity of the month. This can be any charity who is supporting biomedical research by raising funds for it or campaigning about it or that sort of thing. Please nominate charities from all round the world.
Another topic I am working on is fibromyalgia. I want to give information about the disease, causes, treatments, research sources, number of people who have ME and fibro, supportive websites, books, anything fibro related which you find helpful please comment and fill me in. I dont have fibro and I want to get advice from people who do so I can write the best article possible!
We also want to incorporate fibromyalgia and appropriate coloured ribbon into the campaign and it will have its own area of the website and information etc. So any suggestions please shout.
In other news we have raised enough money to incorporate in Nevada!!!!! So thank you to everyone who donated, and please bear with us while we file the paperwork for official charity status in Nevada USA. Our next fundraising project is to raise the $300 to incorporate in the whole of the USA as a natrional non profit with tax exemption status. Stay tuned!
Thank you for your help! Go to www.blueribboncampaignforme.org for more information! If you are interested in getting involved in the campaign and joining in with our meetings, offering your skills etc...please shout we are a very friendly group!
Laura ~X~ | |
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| Last week my mum had a heart attack. It's pretty tough for everybody, especially her. But since she came home on Thursday, I've been a pretty much full time carer. To be honest, I'm getting towards the end of myself, both physically and emotionally. There's not really anybody else around this week to help out apart from my almost 84-year old grandmother. I'm trying my hardest not to make my mum feel guilty but I am so exhausted I don't know what to do. Any words of encouragement would be greatly appreciated. | |
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