| Tuesday, May 14th, 2030 |
10:41 pm
[spidress420]
 |
Posting Access For Future Reference
The kinks in our posting access system have been ironed out, and you should all have access to submit entries at this time. Due to a few unsightly trolling incidents over the past few years, I have disabled automatic/open posting for members, so all entries require approval prior to publication. If there are any future problems with submissions, posts, or comments, please leave a comment here and it will be attended to as soon as possible.
If the matter is urgent, or you do not feel comfortable voicing your concern in a comment, please feel free to email me at: ldelpercio@gmail.com.I would also like to add that you're all spectacular, and I want you to submit as many entries as you'd like. The only entries that will be rejected from publication are those sent by trolls. Please do not be hesitant to post how you feel/questions you might have/what you're going through. Even if your post does not receive any comments, it does not mean that it did not touch someone or that others did not read it. So, happy posting! |
| Wednesday, May 13th, 2009 |
6:02 pm
[jane_doe_]
 |
I'm back!
I was diagnosed with bladder cancer at the very end of 2004 (I was 23, turning 24 at the time). I joined this group, had surgery, recovered, had lots of follow-up appointments, and the tumors weren't coming back. After a couple of years, I started feeling like a cancer-poser, so I stopped watching this community. ( Ummmmmm I'm gonna put this behind a cut because it's so whiny )Anyway, any other young people have bladder cancer? Thanks! Jane Current Mood:  stressed |
| Thursday, March 26th, 2009 |
4:28 pm
[gieseppi]
 |
I'm beginning to believe that all the research and "cures" for cancer are just hype. A good friend of my wifes died this morning That brings, of people who I personally know, death due to cancer - 4 all other reasons 1 |
| Tuesday, February 24th, 2009 |
9:38 pm
[cabosstone]
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Young Adult Cancer Support Group
My name is Colin and I'm now almost eight years out from my bone marrow transplant for NHL. I'm currently a graduate student in the Clinical Psychology program at California Lutheran University. For my masters thesis I'm creating an eight week psycho-educational young adult cancer support for young adults (18-30) in Southern California. I've had some difficulty finding group members and would love to help the community with this group. I'm not sure if I want to try and post the flier here, but here's a link the Facebook group: http://www.facebook.com/group.php?gid=58274572215&ref=tsHelp would be greatly appreciated! Current Mood:  hopefulCurrent Music: Jimmy Eat World- Futures |
| Saturday, February 14th, 2009 |
11:56 am
[mexorican4life]
 |
hi everyone, i know i'm not a regular poster on here but i just wanted to say that today is my 2nd anniversary of finding out that i was cancer free. when i first posted on here i got so much support from everyone and i'd like to say thank you agein. i hope everone has a wonderful valentines day! Current Mood:  chipper |
| Friday, February 13th, 2009 |
6:34 pm
[off_and_away]
 |
I wanted to thank everyone for their support from my last entry. Got the pathology report back from Children's Hospital of Philadelphia today. My barely 8 year old nephew has glioblastoma multiforme grade IV. They said two years is being optimistic. Less than 6 months is realistic. He's in absolutely no pain. He told my stepsister he would be strong for her as he ate two slices of pizza. I'm not religious by any means, but I found comfort in this prayer. Maybe some of you will too. Cancer is limited ... It cannot cripple love,
It cannot shatter hope,
It cannot corrode faith,
It cannot eat away peace,
It cannot destroy confidence,
It cannot shut out memories
It cannot silence courage,
It cannot invade the soul,
It cannot reduce eternal life,
It cannot quench the spirit,
It cannot lessen the power
of the Resurrection. Current Mood:  numb |
| Thursday, February 5th, 2009 |
8:49 pm
[off_and_away]
|
when i first joined this community, it was when my friend joe passed away from non-hodgekins lymphoma in march 2007. two months later, my dad was diagnosed with leukemia (cml). a few months later, my stepsister was officially in remission from her stage 3 breast cancer. and today, i learned her son, my 8 year old step-nephew, has an extremely aggressive form of brain cancer. i know unfair isn't the right word, even when it feels that way. nothing about dying seems fair, unless you're 90 and die peacefully in your sleep. but 8 years old? this was the kid that taught me how to play the wii, and made me watch him do the happy feet dance for a solid two hours on thanksgiving one year. "wait carolyn, i'll do it better this time." he was supposed to be a heartbreaker when he grew up, with his curly blond hair and bright blue eyes. and now he might not do that. what the hell. thank you for reading. i don't post hear often, but i do read the community to know... you all understand. Current Mood:  anxious |
| Thursday, January 29th, 2009 |
2:18 pm
[forestcats]
 |
Visit results
So against my mother's wishes I showed up in Vegas with the express purpose of going to her doctors appt to get the details on the latest CT. Yes there has been growth. She hasn't had a full series so he needs to see two more doses before he can properly assess the use of this particular chemo. She also refused a CT at the start of the series so he doesn't have an accurate baseline. I took notes. I tried to explain to her the concerns and his answers and make sure she had grasped the entire concept. She wasn't very forthcoming during the visit and now I realize it was my presence that was the cause. Today I apologized to her and said that if she had wanted to quit chemo I wasn't going to change her mind. But from what I heard the doctor was NOT considering dropping treatment yet. She is the one wanting to forgo. But she says she will choose to try. She says she didn't know that this wasn't the only chemo choice. Perhaps she didn't hear it when they accepted her, or she focuses on the negative. Maybe she can only view herself and her situation one way. He added me to her case as the emergency contact and that very much pissed her off she said later on. She doesn't want me involved and wants to have complete say. I didn't ask, he chose. He gave me his card and caring as well. After she was taken away to chemo he chose to tell me the timeline provided she continues. It isn't as immanent as my mother acts but it is probable the middle of 2010. The odds he gave me were 14% of success beyond then. This isn't my choice, I just needed to know the facts that aren't obscured by her interpretation. The chemo room was 3 full stations with 4 patients per nurse. It is well lit, most people had someone accompany them. People don't meet each others faces. The staff is kind and well trained. Procedures in place being followed. I glanced at the faces not knowing the stories. Most I could have passed in a grocery store line and never considered they were cancer patients. My mother looked frailer than most. She is very frightened but I think even more so at being exposed to myself. Compassion is what I offer. We all will wind down and die. She has lived her life as she wanted. |
| Monday, January 26th, 2009 |
5:13 pm
[forestcats]
|
News.
Tomorrow night I drive to Vegas. Wednesday morning my mother has an appt at the Cancer Center. She has had her CT scan today. The results will be given to her then. Back in Oct the CT scan found the left lung with metastasis and the right having a couple dozen 1 cm tumors. The prior CT in June was clean. The doctors wanted to start her on Chemo right away. She delayed until December. She has only managed to get 3 out of the 8 planned chemo treatments. I'm expecting only bad news. She said she didn't want me to come, I told her I needed to for myself. She isn't forthcoming or very honest the best of times. My brother has moved in with her and isn't letting me in on any details. I understand she is in fear, and denile, and doesn't want to face this. This is all about her and not me, but I'm finding myself derailed by this. |
| Wednesday, January 7th, 2009 |
10:56 pm
[gwydiontinker]
 |
final update from his wife
My darling and soulmate took his last breath for this lifetime at 2:07am on January 6. I was there holding his hand, and saw a sweet and peaceful ending. I have been without internet since, and have spoken with many friends and family. Thank you all for your love and support, I really felt it, as I have said. Wach time I really needed someone, there has been someone there without asking. I am not alone, I have the job of carrying two hearts for now. I promise I am eating. I promise I will sleep again, at least some. There is so much to do right now, and I am trying to delegate as I can. Thank you all again! |
| Thursday, January 1st, 2009 |
12:17 pm
[gwydiontinker]
 |
happy new year?
This is his wife again: Thank you all for your support and I was able to read him your comments yeaterday during a very lucid period. No doctors expected him to survive for even one day past removing the breathing tube. But he is still physically here. His system is still shutting down, however his heart is still strong. We got to watch fireworks last night through huge windows in a waiting room, they let me borrow a wheelchair for him, and he was very alert. Continued prayers of peace are all we really need (well the in general). Obviously this is tough financially and emotionally for me, and his reality is so altered that it is worse than just "post surgical" reexplaining as things re-enter his reality. He gave me a great "best hug" story for our first anniversary on the 28th. Today is also tough because it is Shadowcat's birthday, their lives were so parallel in so many ways, and that Irishman's passing last July was really tough on Gwy. Thanks again and I will try to post a bit more, to say that this holiday season has been tough would be an understatement, and my 45th birthday is sunday. My blog is MistletoeElf if any of you wishes to view some of the stories of this week, not looking for more friending, just a chance for some others to see how the week has been, at least sort of..... Thanks Blessings upon your new year, and all of your loved ones. Current Mood:  exhausted |
| Saturday, December 27th, 2008 |
1:23 pm
[gwydiontinker]
|
brief update
This is his wife, It is not going well, Best case senario is Hospice. We are waiting for breathing tube removal from post surgery (and a little oops) from Thursday. Sorry for the brief update, but I thought it only fair to let you all know. |
| Wednesday, December 24th, 2008 |
7:25 pm
[arachnerd]
 |
My dad started taking Xeloda about a week ago. So far no side effects other than some tiredness. The doctor wanted him to try the pills because the cancer isn't shrinking as fast with the chemotherapy through his port. (Although he still only has two small spots.) Have any of you taken Xeloda before? Good results? Bad side effects (whether in the beginning or as you continued taking it)? |
| Friday, November 7th, 2008 |
6:45 pm
[cpufem]
 |
hearing loss from chemo
my father has been informed that there is permanent damage to his right ear drum, most likely from his chemotherapy treatment this year. does anyone have experience with this side effect? have any hearing aid recommendations? |
| Tuesday, October 28th, 2008 |
9:08 pm
[redefining_self]
 |
I'm still gonna do it.
(X-posted to my own journal) Yesterday I finally gave in and got a temporary disabled permit. While it will reduce some physical stress in the short term because I won't have to walk so far when I park some place it is also an admission of severe infirmity. But walking distances has become a challenge unless the pace is slower than I'm used to. It will take a few minutes once I get to my desk to recover my heartrate and breathing. It really is the lowest physically that I've been aside from the direct effects of the stem cell transplants. In spite of this I still want to someday do a triathlon. This dream hasn't faded. It has perhaps become a bit more of a distant possibility instead of a certainty that I would finish. But this much is always true - if there is something in your life you want to accomplish and you never try you *will* fail to accomplish that thing. If you make an attempt no matter what you think your chances of success then you will always be able to hold your head up and say 'I tried'. And it is possible you might succeed. But if you never try then you never had a chance. |
| Monday, October 27th, 2008 |
2:20 pm
[mresundance]
 |
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| Monday, October 20th, 2008 |
7:38 pm
[echoboom]
 |
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| Thursday, October 16th, 2008 |
2:00 pm
[rlane33]
 |
Help give a free mammogram
It's breast cancer awareness month. Literally 2 clicks http://www.thebreastcancersite.com/
The Breast Cancer site is having trouble getting enough people to click on their site daily to meet their quota of donating at least one free mammogram a day to an underprivileged woman.
It takes less than a minute to go to their site and click on 'donating a mammogram' -- for free (pink window in the middle).
This does not cost you a thing. Their corporate sponsors/advertisers use the number of daily visits to donate a mammogram in exchange for advertising. Current Mood:  awake |
| Wednesday, October 15th, 2008 |
3:20 pm
[meowmixness]
 |
Help find a cure
Hi, my name is Hannah and I'm collecting money for the leukemia and lymphoma society's light the night walk. Last year my best friend died of leukemia (AML) at the age of 18. The walk is this Saturday in Frederick, Maryland. Donations of any amount are much appreciated. Please consider helping me make a difference. Here's a link to the donation page. http://www.active.com/donate/ltnBaltim/2168_HannahnessThank you, Hannah If this type of post is not allowed, please let me know and I will remove it. x-posted |
12:56 am
[echoboom]
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