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Below are the 20 most recent journal entries recorded in hiv positive's LiveJournal:

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    Saturday, November 21st, 2009
    4:29 am
    [dom_ino]
    This place still alive?

    What's your favorite online community for us pozzers?

    Any suggestions on how to deal with the GI side effects? I'm using Reyataz and Efavirenz. They're working, and my side effects are not bad, but I wonder if they could be lessened still.
    Friday, August 14th, 2009
    1:23 am
    [romanticcuddler]
    This Weeks Guest on Positive Life - Glass and Video Sculptor, Tim Tate
    This week’s guest, Tim Tate. Glass and Video Sculptor, Tim Tate found out he was HIV-positive in the early 1980's. Tim creates Video Reliquaries which are composed of hand cast and blown glass, electronic components, and original video.

    One of his pieces sold at an auction for $82,000. He also has a permanent collection in many museums like The Smithsonian, American Art Museum & The Mint Museum.

    Join Tim and myself as we take you phone calls, tweets, and live chat Sunday, August 16th at 8pm EST.

    Watch the Promo for the show

    We are always seeking guests, email positivelife@whospositive.org
    Tuesday, August 11th, 2009
    3:37 pm
    [romanticcuddler]
    Seeking HIV+ Guests


    Positive Life, the newest addition to the Who’s Positive website is not only a live video weekly broadcasting feature on our website it’s an additional resource to continue to humanize HIV through first hand accounts of people infected and affected by HIV/AIDS. Visit Positive Life and its features at http://www.whospositive.org/positivelife

    Each Sunday night at 8:00pm EST, Founding Director of Who’s Positive, Tom Donohue sits down to interview someone infected or affected by HIV, live from Charlottesville, VA. His guests who could be from anywhere in the world could range from a family member sharing personal stories and struggles of how they are dealing with Tom’s infection to authors, celebrities, doctors – anyone that can either humanize HIV or educate on the topic.

    This is a live show. You can call in, chat, or twitter (@whospositive) throughout the show. Positive Life is just the newest addition to the vast amount of resources on Who’s Positive.

    To express interest in being a guest all you need is a webcam and computer! Just email positivelife@whospositive.org.

    Watch Positive Life at www.whospositive.org/live

    Who's Positive - a group who is infected, affected, sharing real stories about real people - a five year commitment to humanizing HIV through first hand accounts of young adults living with HIV. Visit Who's Positive at http://www.whospositive.org

    Know Your Status! Get Tested For HIV Facebook Cause
    http://apps.facebook.com/causes/543?m=3124eff7
    Wednesday, April 15th, 2009
    11:35 am
    [fragmentedream]
    Relationships following diagnosis
    Hello! My name is Patricia Metzger and I am a graduate student studying clinical psychology. Like you, I have confronted severe and life threatening illnesses – both with my own cancer diagnosis and with the illnesses of loved ones. I have supported several friends and family members as they struggle with diabetes, cancer, HIV, MS, and other serious illnesses. These experiences have forever touched my life and have inspired me to attempt to better understand the experiences of those facing cancer and other life threatening illnesses.

    I am currently conducting a study examining interpersonal relationships and communication amongst those facing cancer or another life threatening disease. I hope to gain a greater understanding of cancer's impact on relationships, the role of communication following a diagnosis, and it's role in psychological health and relationship development.

    I am currently seeking participants in a study of relationships after one partner has received a diagnosis of cancer. Any person who is part of a serious, long term relationship (e.g., married, partnered, etc.) and has either received such a diagnosis, or has a spouse/partner with a diagnosis, is invited to participate. Both halves of the couple are asked to complete the survey; if both persons complete it, they will receive $25 compensaion. Alternatively, these funds can be donated to a charitable organization of your choice, such as the American Cancer Society, National Hospice and Palliative Care Organization, Susan G. Komen Foundation, or any other organization of your choosing.

    You and your spouse are invited to participate in a brief study lasting no more than 20 minutes - most persons complete the survey in just 10-15 minutes. It will ask you about your experiences following diagnosis with cancer. Only persons who are part of a long-term relationship should complete the survey; we also ask you to refer your spouse/partner to also complete the questionnaire. All responses are confidential and anonymous; no identifying information will be collected. Responses will be used only in aggregate form, so that no one can identify your responses.

    The web address for the study is:

    https://survey.uwyo.edu/TakeSurvey.aspx?SurveyID=l20K964K

    In exchange for completion, $25 compensation will be offered to couples where both persons complete the study. These funds are only available if BOTH partners complete the survey. If one person completes the survey, you will receive $5 compensation, again mailed to you or a charity of your choosing. You are asked, following your completion, to ask your spouse/partner to also complete the study. You should simply refer them to the same web address noted above. Available funds can be mailed to you, or donated to a charity of your choice. If you choose to have funds mailed to you, contact information will be stored separately from your survey responses.

    To refer your spouse/partner and receive compensation, you should direct your spouse/partner to this same survey link (https://survey.uwyo.edu/TakeSurvey.aspx?SurveyID=l20K964K). Completion by both you and your spouse/partner will better help us understand relational issues resulting from diagnosis and will help us to develop interventions, treatments, and therapies that will facilitate coping with this difficult life event.

    If you have any questions, comments, or concerns, please contact me at the following email address: metzger@uwyo.edu.

    Thank you very much for your assistance on this project! Completion will help us better address the needs of those facing cancer and other serious illnesses so as to minimize the stressors at this time. If interested, please contact me via email (metzger@uwyo.edu) for the results of the study.

    Again, you can access this brief study at:

    https://survey.uwyo.edu/TakeSurvey.aspx?SurveyID=l20K964K


    Sincerely,

    Patricia L. Metzger, M.S.
    University of Wyoming
    Department of Psychology
    metzger@uwyo.edu


    NOTE: You may need to copy/paste the web address into your browser (https://survey.uwyo.edu/TakeSurvey.aspx?SurveyID=l20K964K) - it is critical that it be copied as "https://" rather than conversion to a non-secure link.
    If this entry does not work, you may also visit: https://survey.uwyo.edu and enter l20K964K as the survey number. Thank you for your time and assistance!
    Wednesday, April 1st, 2009
    10:15 am
    [maskedmarvel]


    I talked with the owner of this dating service and he said if anyone signs up for a month subscription, email him and he will give a month free, so buy one get one free: http://www.hivpoz.net/
    Tuesday, March 24th, 2009
    11:44 am
    [kc_risenphoenix]
    AIDS Walk 2009
    Well, it is that time of year again. Very soon AIDS Walk will be on us. I’ve already put in for a vacation day so I can do my yearly walk. This will be my third year.

    Thank you all who have been supporting me in past years. You’ve helped me raise $2,190! Is that amazing, or what? How incredible.

    I was a teenager in the late 70’s. Experts and researchers believe that HIV entered the United States and North America in general about 1976. But the virus takes time to start doing damage. I “came out” about 1981 or so, and was sexually active during a very bad time -- only no one knew it. Gay and bisexual men were spreading the virus, and didn’t know.

    I was raised Southern Baptist and was carrying around a lot of self hatred, and at that time in my life I believed I was most probably going to hell for being gay (rest assured I don’t think that anymore). Ironically, that self-hatred probable may have saved my life. I met a woman who thought she could make me straight and I packed lock, stock and barrel and moved from Chicago to Kansas City and was faithful to her during the six years of our relationship. Also during that time, there began the rumors of a new “gay” disease.

    At first they were calling it GRID, or gay-related immunodeficiency disease. They didn’t know what it was and figured it was caused by a combination of promiscuity, many doses of STDs breaking down immunity, and poppers (of all things – thank goodness I never liked them anyway!). As those years went by, this acronym was changed to AIDS and the HIV virus was discovered. I remember when my lady discovered she was pregnant, there was an early HIV test and she had it done to make sure our baby was healthy. After all, a gay man was the father.

    Thank God and the fact that while I was a gay man in years were promiscuity was secretly deadly, and that I was a little wild, I wasn’t promiscuous “enough.” Apparently. I guess being taken out of the sex game during those dangerous years saved my life.

    Fear of AIDS (and how little was known about the disease) was one more thing that made it hard to come out the second and final time. But once I realized that it was religion that said I was “bad” and not God, I was finally able to accept myself and come out as to who I really am.

    And by coming out, I had to face something else. AIDS related death. I lost many close friends. Watching big bears turn into concentration camp-like victims was horrifying. Watching gorgeous young hot men turn into skeletons before my eyes was agonizing. Watching friends no matter their age, size or looks, fade away was incredibly tough. Many went FAST in those days.

    Now we have drugs that make AIDS at least a somewhat more manageable disease. Unfortunately, some people misunderstand what that means and have thrown condoms to the wind, and HIV is on the rise again. I can’t tell you how many young gay men I know who haven’t even been tested because they believe the rhetoric that AIDS/HIV is now as “manageable” as diabetes.

    Then why am I still then loosing friends?

    Through miracle upon miracle, I am HIV negative. Considering some of my brushes, and not-so-only-brushes, it really IS a miracle.

    So, I am doing what little I can do to help. I walk.

    If you can, please do the same. Every dollar helps.

    What’s great is that you don’t sponsor by the mile, you just pick an amount. You don’t have to worry that your walker will walk twenty miles or something.

    And if you can’t, will you sponsor me? It is so darned easy and I know it is safe. The website is famous for how safe it is.

    Just go here and help me out? http://www.firstgiving.com/cslkc

    I, and so many others, will appreciate it beyond words.

    We WILL end this disease!!!!

    Namasté,
    Ben
    Monday, January 19th, 2009
    4:30 pm
    [kc_risenphoenix]
    My AIDS Walk Video
    I am putting together a slide show to inspire people in Kansas City to do AIDS Walk this year...

    If you have HIV/AIDS and you would like me to include a picture of you, please let me know.

    All kinds of pictures...

    Happy and sad...

    Please let me know.

    Thank you,
    Ben
    Sunday, January 18th, 2009
    12:55 pm
    [kc_risenphoenix]
    A Unique Request?
    A Unique Request?

    Help!

    I am making a video for AIDS Walk Kansas City. It is to help inspire people to either walk, or to support someone who is walking.

    So I need a good song! Not too sappy, not too sad. I am not going on guilting people here. That kinda thing pisses me off. I bet there are a ton of wonderful songs I could use, but for the last week, I’ve been a total blank for some reason. Please help!

    Make suggestions? Upload something?

    There is hope now. It isn’t necessarily the death sentence it used to be. But we need people to support AIDS research and facilities that help people with AIDS.

    I would appreciate anything you can do.

    Thank you and Namasté.
    Wednesday, December 10th, 2008
    2:50 pm
    [ashsstar]
    So.. a little help to go a long way.
    Hi Everyone,

    I work for a hospital who has retail several retail pharmacys. When I was a teenager I lost a best friend and uncle to this ugly disease and so it's always been close to my heart.

    Currently I'm working with a great group of people to put together a specialty pharmacy for HIV positive people. Our pharmacists would be really in the know with the mediciations and really be involved with our patients because trust and confidentiality is key.

    All I'm asking is for some HONEST answers to these questions or only answer the ones that apply to you (but the more the better) to set up the best program possible. Or email me. AHOLTZ1@yahoo.com

    Thanks..

    1) Do you use a big box pharmacy or a smaller pharmacy currently? And, do they usually have your meds in stock when you need your refills?

    2) Is location a factor in choosing a pharmacy?

    3) How importiant of a role does your pharmacist play in your drug education?

    4) How importiant would a co-pay assistance option be? And, are you less compliant at times due to lack of copayment?

    5) Would you now or in the future benefit from nutritional counseling?

    6) Would you take advantage of the opportunity to have an AIDS service contact available to you to talk about housing, food, transportation, child care, employment, insurance.. or anything else that may be of an issue or another various program you may want to take advantage of?

    Lastly two most importiant questions:

    Confidentiality is VERY importiant to us.

    7) Would you be more inclined to use a pharmacy attatched to a clinic to insure privacy more so than as to use a free standing pharmacy?

    8) Do you have anything, anything at all, to contibute to make us a better place. We don't want to be the biggest.. just the best in service.
    Wednesday, October 29th, 2008
    10:51 pm
    [neuro_nougami]
    Hey everyone
    Just like most of the people before me, I too am afraid that I might test HIV positive. Although it's been awhile since I had unprotected sex some of my lymph nodes are starting to swell [one on my neck, groin, and under my arm which is causing it to hurt]. I also have a cough, but its not bad. I did have a sore throat but its no longer painful. I'm trying to find the health dept. In my city so I can take a rapid oral test just to be sure, but I also wanted to see if maybe I just wasn't being paranoid.

    What do you all think?

    Current Mood: confused
    Sunday, October 19th, 2008
    5:26 pm
    [hexabba]
    Walking Names Project In The News!
    This was from a couple of days ago, I didn't get a chance to share it but wanted to!

    Walking Names Project


    The walk was today, and it went off great! We raised $600 from one event the week before, and Walking Names Project was able to sponsor 18 people!!!

    Thank you everyone who supported the Project!

    It isn't completed, and if you haven't heard about it yet you can find it here!

    x-posted!

    Thanks!

    Jai Smith
    Director
    Walking Names Project

    Current Mood: chipper
    Friday, October 17th, 2008
    4:56 pm
    [romanticcuddler]
    HIV-Positive? Agency seeking individuals

    Agency looking for HIV-Positive individuals

    Who's Positive has been requested to forward this message through to our network of HIV+ individuals. We will forward your information onto the casting company as soon as it is recieved for consideration. Who's Positive encourages you to forward this email onward to others you know who are HIV+.

    We are a healthcare ad agency producing a Video and Photo Shoot for a pharmaceutical company, to be shot first week of November. We are looking for HIV+ Men and Women willing to tell their story and talk about their experiences. There will be compensation for your time. If you are HIV+ and are interested in working with us on this project please email Who's Positive at hivcasting@whospositive.org.

    Send me a portrait of yourself as well as your contact information. We will be contacting you shortly to see if you qualify. There are a series of questions we will need to ask about the medication you're on as well as your

    CD4 count and viral load.

    Compensation ranges from $500 to $1000.

    HIV+ Adults 25yrs and up. All ethnic backgrounds are welcome.

    Photo/Video Shoot will take place in Manhattan (we will pay for travel.)

    Contact Who's Positive on behalf of the agency: hivcasting@whospositive.org

    Thank you and we look forward to hearing from you.

    Sign up to get emails such as this. Who's Positive maintains listings of HIV+ individuals to provide information to them such as this. Who's Positive does not in anyway sell, trade or compromise the integrity of our list-serve. All information provided is strictly confidential.

    If this form does not work, visit http://www.whospositive.org to Join!


    Fill out your e-mail address
    to receive our newsletter!
    E-mail address:
    Full Name:
    Age:
    Select your interests
    I would like to Join the Who's Positive Mailing List
    I am HIV + and would like confidential emails send to me about HIV+ related material

    Saturday, July 12th, 2008
    4:25 pm
    [denverseagull]
    Jewelry with a purpose
    bangle 46664

    Montblanc, makers of fine writing instruments, leather goods, watches and jewelery, has recently partnered with the Nelson Mandela Foundation to pledge a portion of sales of their upcoming signature bangle aptly named the 46664 Mandela Bangle. Montblanc, whose philosophy “Helping others gives success true meaning”, has taken  African craftsmanship into the limelight by branding the bangles with the prestigious Montblanc label and distributing them to upscale fashion boutiques and jewelry stores in the country.


    The bangles are made with South African precious metals and hand finished by skilled craftsmen infected or affected by HIV or Aids. The 46664 bangle will be available at selected Montblanc boutiques worldwide beginning June 27th. The first edition 46664 bangles will be available in Platinum, 18ct Gold and Silver and come in both men’s and women’s sizes. All bangles are individually numbered and will also be engraved with Nelson Mandela’s historic prison number whilst he was imprisoned on Robben Island.

    Tuesday, April 1st, 2008
    9:46 am
    [ofrady]
    Dating
    Ok anyone out here know were a HIV positive man can go to find a mate? (online)
    Monday, February 11th, 2008
    11:14 am
    [hexabba]
    More From AIDS Awareness Project 2008
    Now being called The Walking Names Project, has a website www.walkingnamesproject.org  
    And a video


    Current Mood: accomplished
    Saturday, February 9th, 2008
    1:31 pm
    [windhauntsyou]
    HIV/AIDS work in Africa
     Hello All

    I will be going to South Africa to do HIV/AIDS related work and am trying to raise money for the cause while I am there and programs in South Africa.

    Please visit this site if you can donate anything. This is a  secure site and an email confirmation of your donation would be sent to you immedietly following.  Even $5.00 helps, it's potentially a meal for a child

    www.active.com/donate/jasonhairwynn

    If you know of anyone, please pass this link around

    I have recorded a voice post over on my journal if that helps any. Thanks alot
    1:26 am
    [windhauntsyou]
    HIV/AIDS work in South Africa
     Hello All

    I will be going to South Africa to do HIV/AIDS related work and am trying to raise money for the cause while I am there and programs in South Africa.

    Please visit this site if you can donate anything. This is a  secure site and an email confirmation of your donation would be sent to you immedietly following.  Even $5.00 helps, it's potentially a meal for a child

    www.active.com/donate/jasonhairwynn

    If you know of anyone, please pass this link around
    Thursday, February 7th, 2008
    5:58 pm
    [hexabba]
    AIDS Awareness Project 2008
    I am living in Tucson, AZ in the United States, and I have put together a project for the AIDSWalk event that will be going on in October of 2008. Please help if you would like someone affiliated with this project. If you do not agree with the project I am more than willing to listen to your concerns, but please remember that this is to raise awareness of the disease and I am doing this to honor someone whom I loved that passed away. I have never done anything this involved with the community, and I want this to be the beginning of many awareness projects I create.

    I am making an AIDSWalk ribbon dress which I will wear in the AIDSWalk. I am going in drag in honor of my fairy godfather Jimmy, who passed away two years ago from AIDS. I need everyone's help in order to get names. If you have any names of individuals who are currently living with HIV/AIDS, or anyone who has passed away from HIV/AIDS please post their name to this blog and I will write their name on a ribbon for the dress. I hope to have it covered in order to make the statement that much stronger. When the walk is done I will be cutting the dress up the back and turning it into a quilt square from the AIDS quilt.

    Please help me by stating any names you would like to be part of this project and by passing this message on to friends and family, give a voice to those who didn't have one.

    And please help me by participating in or sponsoring someone for the AIDSWalk 2008. I will continue to walk, until there is a cure.

    Thank you for taking the time to read this message.

    Current Mood: hopeful
    Friday, January 18th, 2008
    6:46 pm
    [insomnia]
    Prominent AIDS researcher, LGBT advocate endorses Obama.

    Jerry L. Cade, M.D., Co-founder and Co-medical director of Nevada AIDS Research, and a prominent local LGBT advocate, has publically announced his support for Barack Obama.

    He has written the following in his endorsement:

    "For many reasons, I believe that the best hope for the LGBT and HIV/AIDS communities is Senator Barack Obama. In fact, the best hope for this country and the planet is Senator Barack Obama. . .  I am ultimately supporting Senator Obama because I think he will do the best job at ensuring we continue our quest for LGBT equality and ensuring that we take care of our brothers and sisters who have been affected by HIV/AIDS. . . 

    There are clear differences among the candidates on LGBT issue and on HIV/AIDS issues. Furthermore, there is good evidence as to which candidates will most aggressively fight for us and for change. . . 

    For example, both Senator Obama and Senator Edwards have called for a full repeal of the Defense of Marriage Act . . . Unfortunately, Senator Clinton would only partially repeal the act. Senator Clinton would "leave in place the section of DOMA that allows states to self-determine the question of marriage without being obligated to recognize the marriage laws of other states" (from The Advocate, January 8, 2008). . . 

    Senator Obama's (as well as Senator Edwards's) main presidential websites . . . prominently display special sections showing their support for the LGBT community . . . In fact, I found a LGBT secion on every candidate's main website except for Senator Clinton's. . . . I am told that Senator Clinton supports us, but I feel like she wants to do so quietly. I am also bothered by the fact that Senator Clinton was the last of the eight candidates to declare her support for civil unions. . . 

     With respect to HIV/AIDS issues, all three candidates have called for increased funding for treatment and provention; however, as late as July of 2007, Senator Clinton had not decided if she supported repealing the ban on using Federal funds for needle exchange programs:
    http://stopthedrugwar.org/chronicle_blog/2007/jul/31/important_exchange_re_clinton_ob

    Fighting HIV/AIDS needs forethought, leadership, and courage. We need a president who is willing to take the lead in AIDS prevention and treatment. We cannot wait for someone to come around to supporting an issue once everyone else is already there. We need a creative, visionary leader who will implement whatever changes are needed to prevent further HIV infection. We need Senator Obama."

    Tuesday, January 1st, 2008
    10:14 am
    [pearl_bracelet]
    Art project
    Dear all,

    I am making an art project specifically about appearances, and AIDS. The general theme is that you don't know what the feeligs are of an HIV positive person as we all hide to conform to the norms of society. I am making an AIDS awareness dress out of canvas and on the canvas I want to paint the interior feelings of someone living with AIDS. I was wondering if you could write either a sentence, or a paragraph, whatever feels right, which expresses either what you felt the exact moment you found out you were HIV positive, or any moment which was extremely difficult (telling a loved one,etc..)

    If you do not feel comfortable posting it as a comment feel free to email me at alicia.allen@gmail.com

    Thanks for the contributions!
    Alicia
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